Magical Thinking + Goodbye, Daisy
After I got sick, I'd wake up every morning thinking that maybe I'd feel better. That maybe my body would just up and start working...
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CHRONICALLY
EMILY
Living with Chronic Illness since 1998
I'm Emily--dog lover, human, creator of community, advocate, fundraiser, Jew--and I live with invisible chronic illness. Join me in exploring and embracing the disability space and my life with ME/CFS, dysautonomia and related illnesses.
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Em of One
- Jan 26
- 3 min
Our Interabled Love Story
Chris and I first met on Bumble in April of 2023. I wasn't feeling very well, so I delayed our first date for three weeks. In the end,...
452 views1 comment
Em of One
- Jan 26
- 1 min
This is a Disability Blog? Where Do Ellie, Hank and Chris Fit?
This is a blog about disability right? As readers, you might wonder why I've chosen to write so much about Ellie. How does it fit with my...
294 views0 comments
Em of One
- Jan 18
- 3 min
Ellie: My Kindred Spirit + 18's
I can't stop thinking about the number 18. I met Ellie and Hank for the first time on October 22, 2023 at my Rowe's Research Runners...
240 views0 comments
Em of One
- Jan 18
- 3 min
One Month Later
I have a long list of tasks and to-dos, but I just need to spend the day being with Ellie. She loved to write as much as I did. As I...
191 views0 comments
Em of One
- Jan 18
- 3 min
New Grief, New Loss
Today marks one month to the day that my boyfriend's sixteen year old daughter passed away in her sleep sometime between the hours of 3...
289 views0 comments
Em of One
- Jul 12, 2023
- 3 min
Embracing Disability Pride Month: Proclamation and More!
July is Disability Pride Month, which is something I didn't really have on my radar until I became increasingly involved with the...
145 views2 comments
Em of One
- Jun 26, 2023
- 4 min
A Quarter Century Sick: Where Am I Now? (Part 1)
Each year, I spend time around my anniversary of getting sick/becoming disabled (June 18, 1998) giving myself some space to feel all of...
286 views0 comments
Em of One
- May 21, 2023
- 4 min
25 Years Later: Davidson's Enduring Gifts
This past week marked my 25th anniversary of my graduation from Davidson College. Next month will mark my 25th 'sickiversary'. In this...
275 views0 comments
Em of One
- Feb 19, 2023
- 6 min
When Your Elderly Mom is Your Caregiver
The woman in this photo is my almost 78 year old mother, who has been my primary caregiver since I first became disabled in 1998. That is...
358 views0 comments
Em of One
- Feb 11, 2023
- 2 min
A Snapshot: All In A Day (with Chronic Illness)
Chronic illness is often confusing, even for those of us who live with it. After 25 years, I still wonder how my body can be so...
271 views1 comment
Em of One
- Feb 5, 2023
- 2 min
We Made It! (+ Boom Goes the Chinese Balloon)
We are here! Another year in Sunset Beach, NC. This will be our 9th winter here since we first started snow-birding in 2013. (We missed...
205 views0 comments
Em of One
- Jan 12, 2023
- 5 min
Top 12 Books of 2022
5 Stars I don't usually write reviews on Goodreads, but here is what I wrote about The Girl with the Louding Voice: This book was...
148 views0 comments
Em of One
- Jan 3, 2023
- 2 min
2022: My Year of Books as Survival
It's only since I became chronically ill that I really began to love books. Growing up, I didn't read for pleasure, which always worried...
129 views2 comments
Em of One
- Nov 20, 2022
- 5 min
Ready to Roll? Maybe, Maybe not?
Since it's been a minute, let me bring you up to speed on the process of getting a new wheelchair as an ambulatory wheelchair user. Last...
215 views0 comments
Em of One
- Aug 23, 2022
- 3 min
A Wheelchair Update (With a Side of Microaggressions)
Last night while out for a StRoll with Mom, a castor completely fell off of my wheelchair. The tires are also kaput and no longer holding...
327 views0 comments
Em of One
- Aug 4, 2022
- 2 min
Embracing Identity, Expanding Impact
Last week, I wrapped up my time with my counselor. (Many tears were shed!). She is leaving for a new job. In our short time together...
180 views0 comments
Em of One
- Jul 25, 2022
- 3 min
How Ableism Lead Me to Embrace My Disability
I've spent the past year with a counselor who is trained as a social worker. Instead of approaching problems from a personal level, she's...
268 views1 comment
Em of One
- Jul 3, 2022
- 4 min
Apples to Oranges
I have a tendency to compare things that are not meant to be compared largely because, despite 24 years of disability, I still expect...
308 views0 comments
Em of One
- Jun 18, 2022
- 3 min
24 Years Sick: A Shifting World View
Today, June 18th, marks the 24th anniversary of 'getting sick'. Or maybe now, after all of these years, I would change that language to...
234 views0 comments
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