A Wheelchair Update (With a Side of Microaggressions)
Last night while out for a StRoll with Mom, a castor completely fell off of my wheelchair. The tires are also kaput and no longer holding...
CHRONICALLY
EMILY
Living with Chronic Illness since 1998
I'm Emily--dog lover, human, creator of community, advocate, fundraiser, Jew--and I live with invisible chronic illness. Join me in exploring and embracing the disability space and my life with ME/CFS, dysautonomia and related illnesses.
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Em of One
- Aug 4
- 2 min
Embracing Identity, Expanding Impact
Last week, I wrapped up my time with my counselor. (Many tears were shed!). She is leaving for a new job. In our short time together...
157 views0 comments
Em of One
- Jul 25
- 3 min
How Ableism Lead Me to Embrace My Disability
I've spent the past year with a counselor who is trained as a social worker. Instead of approaching problems from a personal level, she's...
197 views1 comment
Em of One
- Jul 3
- 4 min
Apples to Oranges
I have a tendency to compare things that are not meant to be compared largely because, despite 24 years of disability, I still expect...
230 views0 comments
Em of One
- Jun 18
- 3 min
24 Years Sick: A Shifting World View
Today, June 18th, marks the 24th anniversary of 'getting sick'. Or maybe now, after all of these years, I would change that language to...
202 views0 comments
Em of One
- Jun 5
- 4 min
Stay Small: Dating First, Disability Second
I've been dating this way: Find someone. Act non-disabled. Now I'm saying: I'm disabled. I'm lovable this way. When I started this blog,...
315 views2 comments
Em of One
- Jun 2
- 4 min
I Asked For a Power Wheelchair. Do I "Need" It?
I just received a call from the medical supply company to follow up on my doctor's order for a power wheelchair, I tried to explain why I...
313 views0 comments
Em of One
- May 30
- 3 min
Muddy Waters: A "What The Neck?" Update
Naturally, you (and I) have a LOT of questions about what the diagnosis of craniocervical instability means, where we go from here, will...
266 views0 comments
Em of One
- May 21
- 1 min
Tovah Turns Ten
In an IG post, I promised to post photos from Tovah's tenth birthday once she had recovered from all of her partying! Well, her birthday...
96 views1 comment
Em of One
- May 10
- 4 min
What the Neck? Craniocervical Instability
After a year and a half of relapsing, throwing everything we've got at my symptoms and getting no relief, Dr. Rowe suggested that I have...
435 views1 comment
Em of One
- Mar 16
- 2 min
We Are All Broken Vessels
A couple of days ago while we were at the beach for a short while, I spent a bit of time near the shoreline as the tide came in. That's...
150 views0 comments
Em of One
- Feb 27
- 2 min
Hiding
As I mentioned in an earlier post, a large reason I stopped writing was because of fear. But also there was shame, guilt and the sense...
240 views0 comments
Em of One
- Feb 20
- 2 min
All Of These Feelings Can Be True
Our beach trip has been different this year for many reasons--but the biggest one has been how poorly I've been feeling. People often...
279 views1 comment
Em of One
- Dec 21, 2021
- 3 min
Let's Keep it Real
With the creation of Chronically Emily, I vowed to write about living with chronic illness without shame or guilt, and with honesty,...
448 views3 comments
Em of One
- Dec 11, 2021
- 3 min
Why I Stopped Writing
When I first began blogging in 2005, it was a natural switch from sending out mass emails as a way to keep people informed about what was...
236 views0 comments
Em of One
- Dec 6, 2021
- 2 min
Why Chronically Emily?
For so long I've been floating in a space of: Am I am healthy? Am I sick? Is chronic illness a disability? Will I 'get better'? Am I...
271 views2 comments
Em of One
- Dec 4, 2021
- 2 min
Welcome to Chronically Emily
After a long time quiet on my blog, A Dancing Light, I realized the depth of my need to not only write, but to share my story and passion...
302 views2 comments