Embracing Disability Pride Month: Proclamation and More!
July is Disability Pride Month, which is something I didn't really have on my radar until I became increasingly involved with the...
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CHRONICALLY
EMILY
Living with Chronic Illness since 1998
I'm Emily--dog lover, human, creator of community, advocate, fundraiser, Jew--and I live with invisible chronic illness. Join me in exploring and embracing the disability space and my life with ME/CFS, dysautonomia and related illnesses.
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Em of One
- Jun 26
- 4 min
A Quarter Century Sick: Where Am I Now? (Part 1)
Each year, I spend time around my anniversary of getting sick/becoming disabled (June 18, 1998) giving myself some space to feel all of...
253 views0 comments
Em of One
- May 21
- 4 min
25 Years Later: Davidson's Enduring Gifts
This past week marked my 25th anniversary of my graduation from Davidson College. Next month will mark my 25th 'sickiversary'. In this...
258 views0 comments
Em of One
- Feb 19
- 6 min
When Your Elderly Mom is Your Caregiver
The woman in this photo is my almost 78 year old mother, who has been my primary caregiver since I first became disabled in 1998. That is...
345 views0 comments
Em of One
- Feb 11
- 2 min
A Snapshot: All In A Day (with Chronic Illness)
Chronic illness is often confusing, even for those of us who live with it. After 25 years, I still wonder how my body can be so...
264 views1 comment
Em of One
- Feb 5
- 2 min
We Made It! (+ Boom Goes the Chinese Balloon)
We are here! Another year in Sunset Beach, NC. This will be our 9th winter here since we first started snow-birding in 2013. (We missed...
199 views0 comments
Em of One
- Jan 12
- 5 min
Top 12 Books of 2022
5 Stars I don't usually write reviews on Goodreads, but here is what I wrote about The Girl with the Louding Voice: This book was...
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Em of One
- Jan 3
- 2 min
2022: My Year of Books as Survival
It's only since I became chronically ill that I really began to love books. Growing up, I didn't read for pleasure, which always worried...
124 views2 comments
Em of One
- Nov 20, 2022
- 5 min
Ready to Roll? Maybe, Maybe not?
Since it's been a minute, let me bring you up to speed on the process of getting a new wheelchair as an ambulatory wheelchair user. Last...
208 views0 comments
Em of One
- Aug 23, 2022
- 3 min
A Wheelchair Update (With a Side of Microaggressions)
Last night while out for a StRoll with Mom, a castor completely fell off of my wheelchair. The tires are also kaput and no longer holding...
320 views0 comments
Em of One
- Aug 4, 2022
- 2 min
Embracing Identity, Expanding Impact
Last week, I wrapped up my time with my counselor. (Many tears were shed!). She is leaving for a new job. In our short time together...
175 views0 comments
Em of One
- Jul 25, 2022
- 3 min
How Ableism Lead Me to Embrace My Disability
I've spent the past year with a counselor who is trained as a social worker. Instead of approaching problems from a personal level, she's...
243 views1 comment
Em of One
- Jul 3, 2022
- 4 min
Apples to Oranges
I have a tendency to compare things that are not meant to be compared largely because, despite 24 years of disability, I still expect...
304 views0 comments
Em of One
- Jun 18, 2022
- 3 min
24 Years Sick: A Shifting World View
Today, June 18th, marks the 24th anniversary of 'getting sick'. Or maybe now, after all of these years, I would change that language to...
231 views0 comments
Em of One
- Jun 5, 2022
- 4 min
Stay Small: Dating First, Disability Second
I've been dating this way: Find someone. Act non-disabled. Now I'm saying: I'm disabled. I'm lovable this way. When I started this blog,...
344 views2 comments
Em of One
- Jun 2, 2022
- 4 min
I Asked For a Power Wheelchair. Do I "Need" It?
I just received a call from the medical supply company to follow up on my doctor's order for a power wheelchair, I tried to explain why I...
344 views0 comments
Em of One
- May 30, 2022
- 3 min
Muddy Waters: A "What The Neck?" Update
Naturally, you (and I) have a LOT of questions about what the diagnosis of craniocervical instability means, where we go from here, will...
289 views0 comments
Em of One
- May 21, 2022
- 1 min
Tovah Turns Ten
In an IG post, I promised to post photos from Tovah's tenth birthday once she had recovered from all of her partying! Well, her birthday...
106 views1 comment
Em of One
- May 10, 2022
- 4 min
What the Neck? Craniocervical Instability
After a year and a half of relapsing, throwing everything we've got at my symptoms and getting no relief, Dr. Rowe suggested that I have...
485 views1 comment
Em of One
- Mar 16, 2022
- 2 min
We Are All Broken Vessels
A couple of days ago while we were at the beach for a short while, I spent a bit of time near the shoreline as the tide came in. That's...
163 views0 comments
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